Entanglements of Rare Diseases in the Baltic Sea Region - Hardcover
by Malgorzata Rajtar (Author), Katarzyna E. Kr (Author), Anna Chowaniec (Contribution by)
Drawing on ethnographic studies of the lived experiences of people with rare diseases, this volume critically examines rare, chronic diseases in the context of care, kinship, and technologies, providing in-depth analyses of local worlds that usually remain at the peripheries of medical anthropological inquiry.
Malgorzata Rajtar is associate professor and head of the Rare Disease Social Research Center at the Institute of Philosophy and Sociology of the Polish Academy of Sciences.
Katarzyna E. Kr is PhD student at the Graduate School for Social Research at the Institute of Philosophy and Sociology of the Polish Academy of Sciences.
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