Ethical Dilemmas in Genetics and Genetic Counseling: Principles Through Case Scenarios - Paperback
by Janice Berliner (Editor)
Knowledge of the genetic basis of human diseases is growing rapidly, with important implications for pre-conceptional, prenatal, and predictive testing. While new genetic testing offers better insight into the causes of and susceptibility for heritable diseases, not all inherited diseases that can be predicted on the basis of genetic information can be treated or cured. Should we test everyone who wants to know his or her genetic status, even when there are no possibilities for treatment? What is the role of the "right-not-to-know?" Do we test children for adult onset disorders because the parents just "have to know" or do we respect the children's right to choose when they are older? Do we allow commercial companies to offer genetic tests directly to consumers without the proper oversight regarding what the test results will mean?
By using a creative approach that focuses on a single extended family as a case example to illustrate each chapter's key point, the authors elucidate ethical issues arising in the genetics clinic and laboratory surrounding many timely issues, including: - prenatal and pre-implantation genetic diagnosisJanice Berliner, MS, CGC, is a Board-Certified Genetic Counselor and Senior Genetic Counselor at Memorial Sloan-Kettering Cancer Center. She has served on numerous committees as well as the Board of Directors of the National Society of Genetic Counselors and the American Board of Genetic Counseling.
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